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facebook twitter about us board of directors founders circle bylaws committees financial statements policy statements meeting minutes contact us donate join us participatory medicine? resources for patients resources for professionals memberships join as an individual join as an organization donate organizational supporters & partners conference sponsorship opportunities blog contacting us & contributing content categories & authors yearly archives journal select page e-patients blog our blog highlights items of interest to those in the world of e-patients and participatory medicine. some of our most popular topics include e-patient stories , e-patient resources , problems in healthcare , medical records , news & gossip , patient networks , policy issues , positive patterns , patient/doctor co-care , patients as teachers , reforming healthcare , trends & principles , and why participatory medicine . our newest blog posts are below. thcb picks up post by josh rubin – “we the patients” is a winner! casey quinlan | aug 27, 2018 | 0 comments from spm lifetime member josh rubin: fellow s4pmers, i am elated to report that on monday, august 20, 2018, the health care blog (thcb) re-posted my s4pm guest blog post titled, "biomedical knowledge must be mobilized to save lives, not privatized in the 'last... read more what healthcare can learn from mr. rogers nancy michaels | aug 7, 2018 | 2 comments three insights our member nancy michaels gleaned from watching the movie “won’t you be my neighbor” that clearly connect to medicine and the relationship between a medical team and patient or caregiver. read more biomedical knowledge must be mobilized to save lives, not privatized in the “last mile” casey quinlan | aug 5, 2018 | 0 comments guest post by spm lifetime member joshua c. rubin, jd, mba, mph, mpp last week, facebook’s unprecedented stock price collapse triggered by concerns over personal data privacy, as well as same-day commentary regarding glaxosmithkline’s investment in 23andme to gain... read more announcing spm’s new doc tom awards. nominations are open! e-patient dave | aug 3, 2018 | 0 comments it's here: our society's new doc tom awards are open for nominations! spread the word, and join us at our second annual conference on october 17 for the award! if you don't yet know about doc tom ferguson, founder of the e-patient movement, read our /doctom page. to... read more study: engaging patients in co-design works. join us at our conference! e-patient dave | jul 26, 2018 | 1 comment engaging patients in care design leads to higher level results – the kind of thing you’d hire big fancy consultants to do. who knew?? we did! read more patient ownership of data? danny van leeuwen | jul 22, 2018 | 0 comments do you care about health data ownership and want to stay abreast of national initiatives to wrestle with and solve ownership issues? if so, this post is for you. what does it mean to own my health data? is it like owning my car or my house? is it like a copyright? do... read more facebook patient privacy issue – important #bcsm twitter chat tonight, july 16 9pm et e-patient dave | jul 15, 2018 | 0 comments tonight: 9 pm eastern time. #bcsm twitter chat on the latest facebook privacy issue. this time the data leaked is from a patient group. fb says it's a nothingburger. what do you think? facebook has a record of privacy leaks. the poster shown here (click to enlarge)... read more michael millenson | jul 4, 2018 | 0 comments originally published six years ago - as good as new today! the empowered patient, skeptical of professional authority, is not a new phenomenon: s/he was actually created by the american revolution. reading through historian gordon wood’s pulitzer prize-winning... read more medicare holds out promise of health record access revolution michael millenson | jun 27, 2018 | 0 comments this is the second of two posts about this important policy issue regarding portability of our medical records. the first provided background, with link to a pdf of the comments spm submitted, largely authored by michael millenson, who provides this essay for context.... read more spm’s comments on important proposed cms interoperability rules e-patient dave | jun 27, 2018 | 0 comments this is the first of two posts about this important policy issue regarding portability of our medical records. the second is by michael millenson, who did the lion's share of this work, as noted below. our society's advocacy and policy chair vera rulon @vrulon has... read more request: harnessing the patient voice from the ward to the boardroom e-patient dave | jun 19, 2018 | 0 comments i know there are numerous initiatives along these lines so please circulate this widely. help publicize and share what others are doing to incorporate patient perspectives in the present and future of healthcare! i've received the following request from luke... read more spm on tv in hartford after last week’s “better health” conference e-patient dave | jun 13, 2018 | 0 comments email subscribers, i'm not sure the video below will come through to you - if it doesn't, click the headline to come see it online. http://www.wtnh.com/ct-style/the-better-health-conference-helping-to-change-healthcare-as-we-know-it/1236774613 last week at the sixth... read more « older entries home about us contact us privacy policy facebook twitter copyright © 2017 society for participatory medicine donate
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Domain Name: E-PATIENTS.NET
Registry Domain ID: 84457004_DOMAIN_NET-VRSN
Registrar WHOIS Server: whois.godaddy.com
Registrar URL: http://www.godaddy.com
Updated Date: 2017-03-14T11:14:24Z
Creation Date: 2002-03-13T15:41:49Z
Registry Expiry Date: 2018-03-13T14:41:49Z
Registrar: GoDaddy.com, LLC
Registrar IANA ID: 146
Registrar Abuse Contact Email: abuse@godaddy.com
Registrar Abuse Contact Phone: 480-624-2505
Domain Status: clientDeleteProhibited https://icann.org/epp#clientDeleteProhibited
Domain Status: clientRenewProhibited https://icann.org/epp#clientRenewProhibited
Domain Status: clientTransferProhibited https://icann.org/epp#clientTransferProhibited
Domain Status: clientUpdateProhibited https://icann.org/epp#clientUpdateProhibited
Name Server: NS10.DNSMADEEASY.COM
Name Server: NS11.DNSMADEEASY.COM
Name Server: NS12.DNSMADEEASY.COM
Name Server: NS14.DNSMADEEASY.COM
DNSSEC: unsigned
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REGISTRAR GoDaddy.com, LLC
SERVERS
SERVER net.whois-servers.net
ARGS domain =e-patients.net
PORT 43
TYPE domain
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NS12.DNSMADEEASY.COM 208.80.126.4
NS14.DNSMADEEASY.COM 208.80.127.4
REGISTERED yes
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